The University of California, Berkeley is committed to protecting the privacy and accuracy of your confidential information to the extent possible, subject to provisions of state and federal law. Other than as required by laws that guarantee public access to certain types of information, or in response to subpoenas or other legal instruments that authorize access, personally-identifiable information is not actively shared.
Participation in research may involve a loss of privacy, but your information will be handled as confidentially as possible. If information from this study is published or presented at scientific meetings, your name and your child’s name will not be used. No one but the study staff and researchers from collaborating institutions will have access to your responses to the interview or to the information that we obtain from the hospital and laboratory components of the study.
All study staff undergo training in protecting human research participants, including completion of one of the online courses offered by the Collaborative Institutional Training Initiative and the National Institutes of Health.